Meet Amy Cohen, MPH

Clinical Trials Strategist & Patient Advocate

I founded The Patient Room to reimagine how patient voice shapes clinical trial design. As both a sickle cell patient and clinical trial professional, I understand firsthand the trust gap that can prevent studies from reaching their full potential, and I help sponsors bridge it.

Drawing on direct experience working with hospitals, pharmaceutical sponsors, and community organizations, I help ensure patients have real access to the care and opportunities that research can offer. My goal is to make sure patient perspectives are not only heard but fully integrated into every protocol and practice.

A woman with dark hair, glasses, and hoop earrings is dressed in a black blazer and white top, standing against a light-colored background.

Why Work With The Patient Room

Sponsors, CROs, and research teams partner with The Patient Room to translate patient realities into practical, trust-centered trial success.

Past experience includes:

  • Led recruitment strategy and community engagement for multi-site clinical trials at Massachusetts General Hospital, driving significant gains in enrollment and communication.

  • Launched and chaired advisory boards for NIH-sponsored research, leading outreach that improved retention and participation from underserved groups.

  • Recognized for award-winning community engagement at NYC Health + Hospitals, managing COVID-19 outreach and building protocols and partnerships for public health and trials.

  • Advisory Council Member for Harvard Business Review; frequent speaker and contributor on patient engagement and implementation science.

Previously Worked With

Mass General Brigham logo with a teal icon of a building and the name in blue text.
Centrexion Therapeutics logo with blue particle and radiating lines
Logo for NOVA REMED, featuring a stylized white angel with a red circle head and wings, with the company name in blue text.

The Patient Room is a consultancy focused on helping clinical research teams humanize clinical trials through trust trust-centered strategy.

Led by Amy Cohen, MPH, we support research across all therapeutic areas with a focus on elevating patient voices in ways that are structured, scalable, and authentic.

Three Core Service Pillars

Patient Voice & Engagement Strategy

We partner with clinical research teams to build engagement strategies that are rooted in community insight and patient realities. From early listening sessions to advisory board facilitation, we ensure you’re capturing what patients actually need, not just what your metrics demand.

Ideal for sponsors launching trials who want to build trust before the first participant is screened.

Trust-Centered Communication

We develop outreach frameworks, messaging, and educational materials anchored in cultural humility, clarity, and credibility. Whether you're refining recruitment language or shaping a broader awareness campaign, we help ensure your communication builds connection, not confusion.

Our approach is especially effective for trials involving historically excluded communities and populations with deep-rooted skepticism.

Clinical Trial Design Advice Grounded in Lived Experience

We advise clinical research teams on how to design trials that are operationally sound and genuinely patient-centered. This includes protocol reviews, visit burden assessments, and participant journey mapping, all viewed through a lens of trust, equity, and feasibility.

We support early feasibility planning and co-design sessions informed by both public health expertise and lived experience.

Let’s Build the Future of Trials, Together

Whether you need a clear engagement strategy, trusted facilitation, or a patient voice at the table, The Patient Room is ready to support your study goals.